Chairs

Goal Statement

Facilitate the collection of high-resolution data on pediatric cancer.

Key Focus Areas

• Establish a REDCap Database for collecting HBCR data and implement a backup server to ensure data security and integrity. (Complete).
• Training CRCs, Data Managers, and Cancer registry staff for accurate data entry and management in the HBCR database.
• Increase centers contributing data to HBCR.

Glimpses of Work

(a) Establish a REDCap Database for collecting HBCR data and implement a Backup Server to ensure data security and integrity

Context

Establishing a REDCAP database for Hospital-Based Cancer Registry (HBCR) data collection and implementing a backup server is essential for efficient data management, security, and integrity in cancer research and patient care. HBCR programs collect comprehensive data on cancer patients, including demographics, medical history, treatment details, and outcomes. This data is essential for monitoring cancer trends, improving treatment protocols, and conducting research.

REDCap, a secure, customizable web-based application, addresses key challenges such as handling large data volumes, ensuring data security and integrity, and providing easy accessibility for researchers and clinicians.

Additionally, the implementation of a backup server ensures data redundancy, disaster recovery, and compliance with healthcare regulations. This setup safeguards critical patient information, ensuring that data is not lost due to hardware failures, cyberattacks, or other disasters, and supports ongoing efforts to improve cancer care and outcomes through reliable data management.

Purpose

• The Protocol and the HBCR Form has been created and approved by the ethics committee.
• The server for REDCap has been installed in Chennai and is in use for Chennai-based Cancer Registry.
• The National INPHOG HBCCR will start by Next Month.

Status/Next Steps

Providing training to healthcare providers and staff involved in data collection on how to use the REDCap system effectively and accurately enter data into the database.

(b) Training CRCs, Data Managers, and Cancer registry staff for accurate data entry and management in the HBCR database

Context

Training Clinical Research Coordinators (CRCs), Data Managers, and cancer registry staff for accurate data entry and management in the Hospital-Based Cancer Registry (HBCR) database is essential to ensure high-quality, reliable data. Proper training ensures that staff can effectively use the REDCap database, maintain data accuracy, uphold security standards, and contribute to meaningful cancer research and patient care improvements. This training encompasses understanding the REDCap system, data entry protocols, and best practices for data management, which collectively enhance the overall integrity and utility of the cancer registry data.

Purpose

We have conducted a two-day training workshop on “Understanding Data Research and Clinical Trials” for over 70 Clinical Research Coordinators and Cancer Registry Staff during PHOCON, held on 25th November 2023 in Chennai.

Status/Next Steps

The plan is now to have an agreed curriculum and self-paced content on video which can be used repeatedly. We plan to develop this by the end of 2024.