These have emerged from the meetings first held in June 2019 at Max Hospital, New Delhi and subsequent discussions at PHOCON and PHOSSCON Varanasi in 2019 and the most recently held ICCI Workshop in Mar 2023. Areas of focus were identified and a taskforce was suggested for each of these areas. Taskforces are essentially a group of individuals who come together who have an interest and expertise in that specific area to accomplish a specific objective. As of March 2023, the following taskforces exist.
We have two taskforce chairs for each taskforce, we have tried to maintain a balance by electing/ choosing one chair as a medical professional and the other a non-medical professional, who can either be a parent, survivor or from any civil society.
| S. No. | Taskforce | Chair | Email Address |
|---|---|---|---|
| 1 | Financing and Policy | Vasudev Bhat, Shalini Jatia | |
| 2 | Information and awareness | Sonal Sharma, Rasmi Palassery | |
| 3 | Psychosocial Support | Bindu Nair, Ruchira Misra | |
| 4 | Continuity of Care | Veronique Dinand, Chandan Kumar | |
| 5 | Supportive Care | Maya Prasad, Vasudha Rao | |
| 6 | Data and Registry | Venkatraman Radhakrishnan, Jennifer Lowe | |
| 7 | Research and Clinical Trial | Amita Mahajan, Yamini Krishnan | |
| 8 | Drugs and Diagnostics | Vikram Gota, Haresh Gupta | |
| 9 | Access to care | Shruti Kakkar, Dhanshri Pradhan | |
| 10 | Workforce and Training | Vikramjit Kanwar, Sindhu Nair |